Allie Ladd is the Co-Founder of The Kennedy Ladd Foundation and a relentless advocate for MPS1. As a mother of two diagnosed with MPS1, Kennedy and Lincoln, she has dedicated her life to ensuring no family faces the journey of MPS1 alone. She strives to educate, connect, and empower families through her work while driving meaningful change in newborn screening, treatment access, and treatment options.

Allie is passionate about bringing families together and creating a supportive network where they can find guidance, resources, and hope. She understands the power of shared experiences and works tirelessly to amplify the voices of those affected by MPS1. Through The Cure MPS1 Project, she highlights individual family stories, raising awareness and mobilizing communities to take action. 

In addition to her nonprofit work, Allie hosts Rising Up Rare, a podcast that shares stories of resilience, advocacy, and hope. She uses this platform to educate others on the realities of rare diseases, encourage action, and foster a sense of unity among families navigating similar challenges.

At the heart of Allie’s mission is the belief in Helping One Person Everyday (HOPE). 

She is committed to making a lasting impact through education, advocacy, or simply standing beside families in their fight—one conversation, one connection, and one act of hope at a time.