Mucopolysaccharidosis Newborn Screening Meeting

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LIVE

Monday, April 10, 2023, 5:30 PM - Wednesday, April 12, 2023, 1:30 PM, In Person at McNamara Alumni and as a Live Webinar, Minneapolis, MN

Format: Hybrid (In-Person Attendance or Live Webinar)

This course is planned and hosted by University of Minnesota Pediatric BMT & CT in collaboration with the National MPS Society and APHL.

The MPS Center at the University of Minnesota will be hosting the 2023 MPS NBS Meeting to share the latest information on mucopolysaccharidosis and the importance of early detection through newborn screening. Early detection is critical to saving lives from the rapidly progressing rare diseases known as MPS I (Hurler Syndrome) and MPS II (Hunter Syndrome), and other subtypes.

View the Agenda/Schedule tab for the preliminary agenda . The times listed reflect CST. 

1. Discuss methods to identify pseudodeficiencies and other inconclusive test results.
2. Identify the optimal timing, benefits, and limitations of therapies for MPS (i.e. enzyme therapy, allogeneic transplant, and gene therapy).
3. Describe methods used to correlate test results with potential phenotypes.
4. Identify modalities used to assess MPS (i.e. neuropsychology, cardiology, orthopedics, imaging, labs, etc.).
5. Describe potential findings and surveillance recommendations.
6. Identify areas of interest for future research.

In-Person Registration Rates:

• Physician $150
• Other Healthcare Professional $100
• Resident/Fellow/Student $25
• Medical Industry Professional $250
• State/Territory Lab Rep $100
• Families $0

Webinar Registration Rates:

• Physician $50
• Other Healthcare Professional  $50
• Resident/Fellow/Student $5
• Medical Industry Professional $50
• State/Territory Lab Rep $50
• Families $0

Note that pre-registration is required for in-person attendance; there is not a walk-in registration option. Registration for in-person attendance will close on Friday, March 31, 2023.

American Medical Association (AMA)
This activity has been approved for AMA PRA Category 1 Credit™. Determination of exact number of credits is pending.

American Nurses Credentialing Center (ANCC)
This activity is eligible for ANCC contact hours; the number of hours is pending.

American Society for Clinical Laboratory Science
P.A.C.E. ® Credit for this event will be provided by the UMN Medical Laboratory Sciences Program using the ASCLS CE Organizer. The UMN Medical Laboratory Sciences Program is approved as a provider of continuing education programs in the clinical laboratory sciences by the ASCLS P.A.C.E. ® Program. Determination of credits is pending review of the preliminary agenda.

Other Healthcare Professionals
Other healthcare professionals who participate in this CE activity may submit their certificate of participation to their appropriate accrediting organizations or state boards for consideration of credit. The participant is responsible for determining whether this activity meets the requirements for acceptable continuing education.

In the event you need to cancel your registration, the registration fee, less a $50* administrative fee, will be refunded if you notify us by 4:30 p.m. March 31, 2023. two weeks prior to the start of the conference. No refunds will be made after this date. (*the administrative fee is $15 for webinar registrations and resident/student/fellow registration categories.)

Note: This event is supported by the Health Resources and Services Administration (HRSA) of the US Department of Health and Human Services (HHS) as part of an award totaling $1,500,000 with 0% financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the US Government. For more information, please visit HRSA.gov.

All activities will take place at:
University of Minnesota McNamara Alumni Center
200 SE Oak Street 
Minneapolis, MN 55455

Map

You can also opt to register to participate via live webinar. The webinar connection information will be shared with those registered to attend approximately one week prior to the start of the course.

Hotel Information:

A block of rooms is being held at The Graduate Hotel.  The deadline to reserve a room at the reduced rate is Monday, March 13.  Use this link to reserve a room at a reduced rate.

To use the booking link:

• Select the exact dates of your stay (top of page)
• Click on check availability
• Select room type - "Book now"
• Confirm your stay, enter your name and credit card

If you prefer, you can call (612) 379-8888 and ask for a room with the group code 041023PEDI. 

Rooms are available for Monday, April 10 and Tuesday, April 11 (departure date April 12).  The Graduate is less than two blocks to the conference venue.

Any room changes or cancellations must be made 24 hours before check-in: you are responsible for the cancellation process and any fees as outlined in your confirmation.

Mitigation of Relevant Financial Relationships

University of Minnesota Continuing Professional Development adheres to the ACCME’s Standards for Integrity and Independence in Accredited Continuing Education and has policies in place to ensure balance, independence, objectivity and scientific rigor in all of its educational activities. Any individuals in a position to control the content of a CE activity, including faculty, planners, reviewers or others are required to disclose all financial relationships with ineligible entities; individuals who fail to complete the disclosure in advance of the course are not eligible to be involved in this course. Specific disclosure information will be shared with learners prior to the start of the course. All relevant conflicts of interest have been mitigated prior to the commencement of the activity.

Exhibit opportunities are available. - learn more and sign up here.

Contact Sarah Jutila Peterson for more information about exhibiting.