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Mucopolysaccharidosis Newborn Screening Meeting


LIVE
Mucopolysaccharidosis Newborn Screening Meeting Banner

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  • Register
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Add to Calendar Mucopolysaccharidosis Newborn Screening Meeting 4/10/2023 5:30:00 PM 4/12/2023 1:30:00 PM America/Chicago For More Details: https://umncpd.cloud-cme.com/course/courseoverview?P=0&EID=2012 Description: The MPS Center at the University of Minnesota will be hosting the 2023 MPS NBS Meeting to share the latest information on mucopolysaccharidosis and the importance of early detection through newborn screening. Early detection is critical to saving lives from the rapidly progressing rare diseases known as MPS I (Hurler Syndrome) and MPS II (Hunter Syndrome), and other subtypes. In Person at McNamara Alumni and as a Live Webinar false MM/DD/YYYY


Date & Location
Monday, April 10, 2023, 5:30 PM - Wednesday, April 12, 2023, 1:30 PM, In Person at McNamara Alumni and as a Live Webinar, Minneapolis, MN

Overview

Format: Hybrid (In-Person Attendance or Live Webinar)

This course is planned and hosted by University of Minnesota Pediatric BMT & CT in collaboration with the National MPS Society and APHL.

The MPS Center at the University of Minnesota will be hosting the 2023 MPS NBS Meeting to share the latest information on mucopolysaccharidosis and the importance of early detection through newborn screening. Early detection is critical to saving lives from the rapidly progressing rare diseases known as MPS I (Hurler Syndrome) and MPS II (Hunter Syndrome), and other subtypes.

View the Agenda/Schedule tab for the preliminary agenda . The times listed reflect CST. 



Objectives
At the conclusion of this course, learners should be able to:

  1. Discuss methods to identify pseudodeficiencies and other inconclusive test results.
  2. Identify the optimal timing, benefits, and limitations of therapies for MPS (i.e. enzyme therapy, allogeneic transplant, and gene therapy).
  3. Describe methods used to correlate test results with potential phenotypes.
  4. Identify modalities used to assess MPS (i.e. neuropsychology, cardiology, orthopedics, imaging, labs, etc.).
  5. Describe potential findings and surveillance recommendations.
  6. Identify areas of interest for future research.

Registration

In-Person Registration Rates:

  • Physician $150
  • Other Healthcare Professional $100
  • Resident/Fellow/Student $25
  • Medical Industry Professional $250
  • State/Territory Lab Rep $100
  • Families $0

Webinar Registration Rates:

  • Physician $50
  • Other Healthcare Professional  $50
  • Resident/Fellow/Student $5
  • Medical Industry Professional $50
  • State/Territory Lab Rep $50
  • Families $0

Note that pre-registration is required for in-person attendance; there is not a walk-in registration option. Registration for in-person attendance will close on Friday, March 31, 2023.


Accreditation
In support of improving patient care, University of Minnesota, Interprofessional Continuing Education is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

American Medical Association (AMA)
This activity has been approved for AMA PRA Category 1 Credit™. Determination of exact number of credits is pending.

American Nurses Credentialing Center (ANCC)
This activity is eligible for ANCC contact hours; the number of hours is pending.

American Society for Clinical Laboratory Science
P.A.C.E. ® Credit for this event will be provided by the UMN Medical Laboratory Sciences Program using the ASCLS CE Organizer. The UMN Medical Laboratory Sciences Program is approved as a provider of continuing education programs in the clinical laboratory sciences by the ASCLS P.A.C.E. ® Program. Determination of credits is pending review of the preliminary agenda.

Other Healthcare Professionals
Other healthcare professionals who participate in this CE activity may submit their certificate of participation to their appropriate accrediting organizations or state boards for consideration of credit. The participant is responsible for determining whether this activity meets the requirements for acceptable continuing education.


Additional Information

In the event you need to cancel your registration, the registration fee, less a $50* administrative fee, will be refunded if you notify us by 4:30 p.m. March 31, 2023. two weeks prior to the start of the conference. No refunds will be made after this date. (*the administrative fee is $15 for webinar registrations and resident/student/fellow registration categories.)

Note: This event is supported by the Health Resources and Services Administration (HRSA) of the US Department of Health and Human Services (HHS) as part of an award totaling $1,500,000 with 0% financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the US Government. For more information, please visit HRSA.gov.

All activities will take place at:
University of Minnesota McNamara Alumni Center
200 SE Oak Street 
Minneapolis, MN 55455

Map

You can also opt to register to participate via live webinar. The webinar connection information will be shared with those registered to attend approximately one week prior to the start of the course.

Hotel Information:

A block of rooms is being held at The Graduate Hotel.  The deadline to reserve a room at the reduced rate is Monday, March 13.  Use this link to reserve a room at a reduced rate.

To use the booking link:

  • Select the exact dates of your stay (top of page)
  • Click on check availability
  • Select room type - "Book now"
  • Confirm your stay, enter your name and credit card

If you prefer, you can call (612) 379-8888 and ask for a room with the group code 041023PEDI. 

Rooms are available for Monday, April 10 and Tuesday, April 11 (departure date April 12).  The Graduate is less than two blocks to the conference venue.

Any room changes or cancellations must be made 24 hours before check-in: you are responsible for the cancellation process and any fees as outlined in your confirmation.



Mitigation of Relevant Financial Relationships


University of Minnesota Continuing Professional Development adheres to the ACCME’s Standards for Integrity and Independence in Accredited Continuing Education and has policies in place to ensure balance, independence, objectivity and scientific rigor in all of its educational activities. Any individuals in a position to control the content of a CE activity, including faculty, planners, reviewers or others are required to disclose all financial relationships with ineligible entities; individuals who fail to complete the disclosure in advance of the course are not eligible to be involved in this course. Specific disclosure information will be shared with learners prior to the start of the course. All relevant conflicts of interest have been mitigated prior to the commencement of the activity.

Faculty Member Information
Role in activity
Name of Ineligible Company(s) / Nature of Relationship(s)
Sarah Jutila Peterson, CPCO, CPMA, CHFP
University of Minnesota
Activity Administrator
Nothing to disclose
Paul J Orchard, MD
Professor
University of Minnesota
Course Director, Faculty
Grant or research support-Sanofi S.A.|Other: Consultant/Clinical Research Support-Orchard Therapeutics|Other: Consultant/Clinical Research Support-Immusoft|Other: Consultant/Clinical Research Support-Bluebird Bio|Other: Consultant/Clinical Research Support-Avrobio|Other: Consultant/Clinical Research Support-Imel|Other: Consultant/Clinical Research Support
Sue A Berry, MD, FAAP, FACMG
University of Minnesota
Faculty
Natasha Bonhomme, Other
Expecting Health
Faculty
Barbara Burton, MD, PhD
Professor of Pediatrics Northwestern University Feinberg School of Medicine
Lurie Children's Hospital of Chicago
Faculty
Mark Dant
Everylife Foundation
Faculty
michael Gelb, PhD, RESEARCHER/SCIENTIST
Boris and Barbara Weinstein Endowed Chair in Chemistry
Univ. of Washington
Faculty
Paul Harmatz, MD
Dr.
University of California, San Francisco
Faculty
Consulting Fee-Chiesi|Consulting Fee-Inventiva|Consulting Fee-Aeglea|Consulting Fee-Homology|Consulting Fee-Audentes|Consulting Fee-Paradigm|Consulting Fee-JCR (Relationship has ended)|Consulting Fee-Capsida|Grant or research support-Genzyme (Any division) (Relationship has ended)|Grant or research support-Sangamo|Grant or research support-Orphazyme|Grant or research support-Inventiva (Relationship has ended)|Grant or research support-Enzyvant (Relationship has ended)|Grant or research support-Denali|Grant or research support-JCR|Grant or research support-RegenXbio|Grant or research support-QED|Grant or research support-Ascendis|Grant or research support-BioMarin|Grant or research support-Takeda Pharmaceuticals (Any division)|Consulting Fee-Avrobio (Relationship has ended)
Annie Kennedy, Other (Biopsychology)
Everylife Foundation
Faculty
Tracy Klug, Other
Newborn Screening Chief
Missouri Department of Health and Senior Services
Faculty
Joseph Muenzer, MD, PhD
University of North Carolina - School of Medicine - Pediatrics
Faculty
Nishitha R Pillai, MD, Assistant Professor
University of Minnesota
Faculty
Andy Rohrwasser, Phd, MBA
Utah Public Health Laboratory; University of Utah
Faculty
Nicolas Szabo, PhD
Utah DHHS
Faculty
Silvia Tortorelli, MD, PhD
Mayo Clinic
Faculty
Robert Wynn, MD
Director, Pediatric Bone Marrow Transplant Program
Manchester University
United Kingdom
Faculty
Elizabeth Braunlin, MD, PhD
Dr.
University of Minnesota
Faculty, Planning Committee Member
Grant or research support-ReGenyX Bio (Relationship has ended)
Julie Beth Eisengart, PhD
Associate Professor, Pediatric Neuropsychologist
University of Minnesota
Faculty, Planning Committee Member
Consulting Fee-Takeda Pharmaceuticals (Any division)|Consulting Fee-JCR Pharmaceuticals|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Novel Therapeutics|Consulting Fee-Orchard Therapeutics|Independent Contractor (included contracted research)-Orchard Therapeutics (Relationship has ended)|Consulting Fee-RegenxBio|Advisor-Denali Therapeutics|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Sanofi S.A.
N. Matthew Ellinwood, DVM, PhD
Chief Scientific Officer
National MPS Society
Faculty, Planning Committee Member
Honoraria-Denali Therapeutics (Relationship has ended)|Honoraria-REGENXBIO, Inc. (Relationship has ended)|Honoraria-EdiGene Biotechnology USA (Relationship has ended)
Kshea Hale, MPH
Senior Specialist, Newborn Screening & Genetics
Association of Public Health Laboratories
Faculty, Planning Committee Member
Nothing to disclose
Terri Klein, MPA
President & CEO
Faculty, Planning Committee Member
Troy Lund, MD
Doc
University of Minnesota
Faculty, Planning Committee Member
Advisor-Sanofi S.A.
Bradley Miller, MD, PhD
Professor
University of Minnesota Medical School
Faculty, Planning Committee Member
Grant or research support-Pfizer (Any division)|Grant or research support-Orchard Therapeutics (Relationship has ended)|Advisor-Ascendis Pharma|Advisor-BioMarin|Advisor-EMD Serono|Grant or research support-Alexion Pharmaceuticals|Grant or research support-Aeterna Zentaris|Grant or research support-Lumos|Grant or research support-Sangamo|Advisor-Tolmar|Advisor-Endo Pharmaceuticals, Inc.|Advisor-Bristol-Myers Squibb Company|Grant or research support-Novo Nordisk (Any division)|Grant or research support-OPKO|Grant or research support-AbbVie (Any division)|Advisor-Vertice (Relationship has ended)
Jennifer A Braun (Danielson), NP
Masonic Cancer Center
Nurse Planner
Nothing to disclose
George Dizikes, PhD, HCLD/CC(ABB)
Knoxville Regional Laboratory Director
Tennessee Department of Health
Planning Committee Member
Nothing to disclose
Amy Gaviglio, MS, CGC
Connetics Consulting
Planning Committee Member
Nothing to disclose
Ashish Gupta, MD, Assistant Professor
MD, MPH
University of Minnesota
Planning Committee Member
Membership on Advisory Committees or Review Panels, Board Membership, etc.-Bluerock Therapeutics|Consulting Fee-Vertex Pharmaceuticals
Jasmine Hammer, PhD
UMN
Planning Committee Member
Nothing to disclose
Patrick V Hopkins
Newborn Screening Project Specialist
Missouri State Public Health Laboratory, Newborn Screening
Planning Committee Member
Nothing to disclose
Sikha Singh, MHS
APHL
Planning Committee Member
Nothing to disclose
Lisa Spofford, MA
University of Minnesota
Planning Committee Member
Nothing to disclose

Monday, April 10, 2023
Dinner and Introduction (No CE)
5:30PM - 7:30PM
Tuesday, April 11, 2023
Breakfast
8:00AM - 8:30AM
Overview of MPS and NBS
8:30AM - 10:00AM
NBS - A Deeper Dive
10:00AM - 12:00PM
Lunch
12:00PM - 1:30PM
NBS - Result Notification and Follow-Up
1:30PM - 3:30PM
Posters and Exhibits
3:30PM - 5:00PM
Wednesday, April 12, 2023
Breakfast
8:00AM - 8:30AM
MPS - Phenotypes and Outcomes
8:30AM - 9:45AM
Treatment Implementation
9:45AM - 10:45AM
Treatment Panel
10:45AM - 11:00AM
Screening for Other MPSes
11:00AM - 12:30PM
Farewell Lunch
12:30PM - 1:30PM

Exhibit opportunities are available. - learn more and sign up here.

Contact Sarah Jutila Peterson for more information about exhibiting.


UNIVERSITY OF MINNESOTA MEDICAL SCHOOL

Office of Continuing Professional Development
MMC 293, Mayo Memorial Building, Room G-254
420 Delaware Street SE
Minneapolis, MN 55455

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