Add to Calendar MPS Newborn Screening Meeting 4/14/2025 4:30:00 PM 4/16/2025 1:30:00 PM America/Chicago For More Details: https://umncpd.cloud-cme.com/course/courseoverview?EID=6123 Description: This event is planned and hosted by the University of Minnesota's MPS Center. For more information contact Shannon Lunn at [email protected] 2025 MPS Newborn Screening (NBS) Meeting, hosted by the University of Minnesota’s MPS Center, is a unique and invaluable opportunity for professionals in the fields of genetics, pediatrics, and rare disease research. This event, scheduled from April 14-16, brin... McNamara Alumni Center and as a Live Webinar false MM/DD/YYYY


Date & Location
Monday, April 14, 2025, 4:30 PM - Wednesday, April 16, 2025, 1:30 PM CST, McNamara Alumni Center and as a Live Webinar, Minneapolis, MN

Target Audience
Professions - Laboratory Professional, Nurse, Other, Physician

Overview

This event is planned and hosted by the University of Minnesota's MPS Center. For more information contact Shannon Lunn at [email protected].

The 2025 MPS Newborn Screening (NBS) Meeting, hosted by the University of Minnesota’s MPS Center, is a unique and invaluable opportunity for professionals in the fields of genetics, pediatrics, and rare disease research. This event, scheduled from April 14-16, brings together some of the most prominent experts to explore cutting-edge advancements in mucopolysaccharidosis (MPS) and the evolving landscape of newborn screening.

Participants will gain deep insights into the critical importance of early detection in conditions like MPS I (Hurler Syndrome) and MPS II (Hunter Syndrome), which, without timely diagnosis, can rapidly progress and become life-threatening. The conference will showcase the latest innovations in gene therapies, emerging screening technologies, and clinical approaches that can significantly improve patient outcomes.

This event offers a unique opportunity to engage with the global MPS community, exchange knowledge, and help shape the future of MPS care. Whether you are a clinician, researcher, or patient advocate, the 2025 MPS NBS Meeting is a must-attend for those committed to advancing newborn screening and rare disease treatment.


Objectives
At the conclusion of this course, learners should be able to:

  1. Recognize the challenges in newborn screening for MPS disorders to ensure early and accurate diagnosis and establishment of phenotype and how this may influence interventions and improved patient outcomes.
  2. Identify the latest advancements in MPS treatments, including emerging therapies such as gene therapy, and how these may be employed in patient care strategies.
  3. Be aware of the importance of effective communication strategies and collaborative practices among multidisciplinary teams involved in the management of MPS to enhance care coordination.
  4. List key gaps in achieving optimal treatments for MPS disorders, including the role of genotype-phenotype and early detection and the risks/benefits of available treatment options.

Registration

 

Registration Policies

  • Pre-registration is requested by March 31, 2025 for in-person attendance. Late registrants cannot be guaranteed course materials, etc. On-site registration will be allowed as space permits. All on-site registrants must use their own device to submit their registration and payment by credit card via CE Portal (cash/check not accepted). Registration through CE Portal is required even if attendance is free-of-charge. 
  • Special needs, such as dietary restrictions, lactation room, etc., should be requested in advance. These requests cannot always be honored on site.
  • Cancellation policy: In the event you need to cancel your registration, the registration fee, less a $50* administrative fee, will be refunded if you notify us by 4:30 p.m. March 31, 2025, two weeks prior to the start of the conference. No refunds will be made after this date. (*the administrative fee is $15 for webinar registrations and resident/student/fellow registration categories.)
  • UMN Office of Continuing Professional Development (OCPD) and/or our partner in providing the activity reserves the right to cancel any activity due to unforeseen circumstances. In the event the activity is cancelled, registration fees will be refunded. UMN OCPD and/or our partner in providing the activity is not responsible for any travel-related costs, charges, or expenses, including but not limited to fees assessed by airline, travel, or lodging agencies.

Accreditation

In support of improving patient care, University of Minnesota, Interprofessional Continuing Education is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

Credit Designations

American Medical Association
The University of Minnesota, Interprofessional Continuing Education designates this live activity for a maximum of 10.25 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.  

American Nurses Credentialing Center (ANCC)
This activity is awarded up to 10.25 ANCC contact hours.

American Society for Clinical Laboratory Science
P.A.C.E. ® Credit for this event will be provided by the UMN Medical Laboratory Sciences Program using the ASCLS CE Organizer. The UMN Medical Laboratory Sciences Program is approved as a provider of continuing education programs in the clinical laboratory sciences by the ASCLS P.A.C.E. ® Program. The course will offer up to 10.0 credits.

Other Healthcare Professionals
Individuals who participate in this CE activity may submit their statement of participation to their appropriate accrediting organizations or state boards for consideration of credit. The participant is responsible for determining whether this activity meets the requirements for acceptable continuing education.